Back at Norton

Valicia tells me that Terrell is now in Norton Hospital's hospice unit.

"Terrell is doing poorly, and needed more assistance with pain control if that is possible to do any more," she said.

The family has been struggling with pain control for a few weeks now.

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Terrell Starks
Living In The Moment

Like his sister, Dominique, before him, 23-year-old Terrell Starks is succumbing to sickle cell disease, an inherited blood disorder that disproportionately strikes African Americans.

Laura Ungar has been the Courier-Journal's medical writer since 2004. Major projects have examined Kentucky's poor health, black lung disease, cervical cancer in India and the health insurance crisis among America's middle class. You can follow her series on medical breakthroughs and read more from Laura on the HealthBytes blog. Through this project, she hopes to learn and share lessons about living life fully -- even through its final chapter.

Sam Upshaw, 46, of Louisville, has been a photographer with The Courier-Journal for 22 years. In addition to covering the community on a daily basis, he has visually documented Muhammad Ali, Kentucky's poor health, the University of Louisville's win at the Orange Bowl in Miami and Hurricane Ivan in Florida. Spending time with Terrell, he is inspired by the young man's strength and wisdom, which helps put life's little inconveniences in perspective.