Carl Starks said his son's unfaltering spirit helps him to face these days of uncertainty.
"He's our inspiration," Carl said of Terrell. "His voice may be weaker, but his spirit is the same."
Carl added: "I always say I'm not made out of the same stuff" as Terrell and his late sister Dominique.
As Terrell's sickle cell disease takes its inevitable course, Carl and Terrell said they try to stay positive as much as they can. But the negative feelings sometimes wash over them like a flood.
"There's no way to suppress them. Once they hit, you deal with it because you have no choice," he said. "It's how you deal with it that makes the difference."
said he
Laura Ungar has been the Courier-Journal's medical writer since 2004. Major projects have examined Kentucky's poor health, black lung disease, cervical cancer in India and the health insurance crisis among America's middle class. You can follow her series on 
Sam Upshaw, 46, of Louisville, has been a photographer with The Courier-Journal for 22 years. In addition to covering the community on a daily basis, he has visually documented Muhammad Ali, Kentucky's poor health, the University of Louisville's win at the Orange Bowl in Miami and Hurricane Ivan in Florida. Spending time with Terrell, he is inspired by the young man's strength and wisdom, which helps put life's little inconveniences in perspective.
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